When we spoke with Dr. Camidge back in October, we were told that Tyler would be one of the three to start the clinical trial in December. About a week ago, we received an email from Dr. Camidge and the clinical trial team detailing some unfortunate news. Instead of being the 3rd in line, he is actually the 4th. This is bad news for us because the trial only takes 3 people at a time. So Tyler will possibly need to wait until February to start the clinical trial. This news has been a blow to our family. Tyler has suffered with continual pain for the last 2 months. The cancer is continuing to grow up his vertebrae, pelvis and arm.
Tyler has a PET scan in December. We are hopeful that Dr. Wilcox will be able to help us in some way. We are trying to stay hopeful, as we know there is always hope. The pain makes it difficult. Tyler tries so hard to keep a happy face, but really he has hurt so much. On a happier note, Tyler still has some good days. God is still great! He will provide a way.
Please know that we continue to pray for Tyler and family. We pray that he continues to have good days. We pray for hope. Our thoughts and prayers are with you.